Table 6 Health and social care utilisation and informal care provision for the past 3 months at the baseline interview
| Â | Control | Intervention | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|
N | User | Utilisation | N | User | Utilisation | |||||
n | % | Mean | s.d. | n | % | Mean | s.d. | |||
Overnight stay | ||||||||||
 Intensive care unit | 36 | 6 | 17.0 | 4.2 | 5.4 | 29 | 0 | 0.0 | n/a | n/a |
 Inpatient ward | 36 | 22 | 61.0 | 10.8 | 10.2 | 29 | 15 | 52.0 | 22.3 | 25.9 |
 Hospice | 36 | 3 | 8.0 | 60.0 | n/a | 29 | 0 | 0.0 | n/a | n/a |
 Nursing home | 36 | 2 | 6.0 | 3.0 | n/a | 29 | 1 | 3.0 | 76.0 | n/a |
 Residential home | 36 | 2 | 6.0 | 69.5 | 13.4 | 29 | 4 | 14.0 | 55.0 | 29.8 |
A&E | 36 | 15 | 42.0 | 1.9 | 1.1 | 29 | 12 | 41.0 | 1.8 | 1.7 |
Emergency ambulance | 36 | 15 | 42.0 | 1.9 | 1.3 | 29 | 13 | 45.0 | 1.5 | 0.7 |
Outpatient | ||||||||||
 Palliative care | 36 | 4 | 11.0 | 2.0 | 0.8 | 29 | 1 | 3.0 | 1.0 | n/a |
 Radiotherapy | 36 | 7 | 19.0 | 2.0 | 1.2 | 29 | 0 | 0.0 | n/a | n/a |
 Oncology clinic | 36 | 13 | 36.0 | 2.5 | 1.5 | 29 | 1 | 3.0 | 2.0 | n/a |
 Other appointment | 36 | 12 | 33.0 | 2.5 | 1.4 | 29 | 6 | 21.0 | 2.0 | 1.3 |
 Hospital transport ambulance | 36 | 2 | 6.0 | 12.5 | 16.3 | 29 | 4 | 14.0 | 7.3 | 5.6 |
 GP face to face | 36 | 28 | 78.0 | 2.7 | 1.6 | 29 | 25 | 86.0 | 3.4 | 2.6 |
 GP on the phone | 36 | 24 | 67.0 | 2.9 | 1.2 | 29 | 17 | 59.0 | 2.6 | 2.5 |
Nurse | ||||||||||
 Marie Curie | 36 | 4 | 11.0 | 1.3 | 0.5 | 29 | 1 | 3.0 | 2.0 | n/a |
 McMillan or palliative care | 36 | 9 | 25.0 | 3.4 | 2.3 | 29 | 1 | 3.0 | 1.0 | n/a |
 Other | 36 | 4 | 11.0 | 1.5 | 0.7 | 29 | 3 | 10.0 | 1.0 | 0.0 |
 Palliative care or hospice at home team | 36 | 7 | 19.0 | 3.0 | 2.6 | 29 | 0 | 0.0 | n/a | n/a |
 Physiotherapist | 36 | 8 | 22.0 | 2.4 | 0.9 | 29 | 7 | 24.0 | 2.5 | 1.9 |
 Occupational therapist | 36 | 6 | 17.0 | 2.0 | 1.1 | 29 | 6 | 21.0 | 2.4 | 1.5 |
 Psychiatrist | 36 | 0 | 0.0 | n/a | n/a | 29 | 0 | 0.0 | n/a | n/a |
 Psychologist or counsellor | 36 | 3 | 8.0 | 1.7 | 1.2 | 29 | 0 | 0.0 | n/a | n/a |
 Spiritual care person | 36 | 0 | 0.0 | n/a | n/a | 29 | 3 | 10.0 | 6.3 | 3.8 |
 Social worker | 36 | 5 | 14.0 | 3.5 | 4.4 | 29 | 0 | 0.0 | n/a | n/a |
 Paid formal carer | 36 | 4 | 11.0 | 90.0 | 0.0 | 29 | 13 | 45.0 | 20.7 | 24.0 |
 Dietician | 36 | 9 | 25.0 | 1.8 | 0.7 | 29 | 4 | 14.0 | 3.0 | 2.6 |
 Voluntary service | 36 | 1 | 3.0 | 0.0 | n/a | 29 | 0 | 0.0 | n/a | n/a |
 Other professionals | 36 | 4 | 11.0 | 1.0 | 0.0 | 29 | 2 | 7.0 | 35.5 | 48.8 |
Investigation or diagnostic tests | ||||||||||
 Blood test | 36 | 35 | 97.0 | 13.8 | 8.7 | 29 | 18 | 62.0 | 5.6 | 6.5 |
 X-ray | 36 | 28 | 78.0 | 3.3 | 3.8 | 29 | 13 | 45.0 | 2.7 | 1.1 |
 Echocardiogram | 36 | 9 | 25.0 | 1.5 | 0.5 | 29 | 5 | 17.0 | 1.0 | 0.0 |
 Electrocardiogram | 36 | 20 | 56.0 | 1.9 | 1.0 | 29 | 10 | 34.0 | 1.2 | 0.4 |
 Ultrasound | 36 | 17 | 47.0 | 1.5 | 0.8 | 29 | 3 | 10.0 | 1.5 | 0.7 |
 Computed tomography scan | 36 | 27 | 75.0 | 1.8 | 1.0 | 29 | 7 | 24.0 | 1.2 | 0.4 |
 Magnetic resonance image | 36 | 13 | 36.0 | 1.6 | 0.9 | 29 | 1 | 3.0 | 2.0 | n/a |
 Other | 36 | 17 | 47.0 | 4.3 | 6.0 | 29 | 7 | 24.0 | 1.2 | 0.4 |
Informal care (hours) | ||||||||||
 Personal care | 36 | 20 | 56.0 | 30.9 | 44.8 | 29 | 15 | 52.0 | 16.3 | 29.6 |
 Help with medical procedures | 36 | 18 | 50.0 | 8.4 | 5.6 | 29 | 12 | 41.0 | 5.5 | 9.2 |
 Help inside the home | 36 | 24 | 67.0 | 6.6 | 4.3 | 29 | 17 | 59.0 | 6.5 | 4.2 |
 Help outside the home | 36 | 25 | 69.0 | 8.3 | 6.9 | 29 | 17 | 59.0 | 2.3 | 1.4 |
 Time spent on call | 36 | 13 | 36.0 | 26.5 | 51.7 | 29 | 11 | 38.0 | 48.2 | 68.6 |
 Other | 36 | 4 | 11.0 | 4.7 | 2.5 | 29 | 4 | 14.0 | 7.3 | 9.5 |
EQ-5D index score | 33 | – | – | 0.00 | 0.33 | 28 | – | – | −0.08 | 0.14 |