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Table 1 Outline of mandatory, flexible and prohibited elements from the Activity Management protocol

From: Investigating the effectiveness and cost-effectiveness of FITNET-NHS (Fatigue In Teenagers on the interNET in the NHS) compared to Activity Management to treat paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME): protocol for a randomised controlled trial

Mandatory

Discussing different types of activity (cognitive and physical) which vary according to age

Finding a baseline level of activity (physical activities vary according to severity)

Discussing different types of high-energy cognitive activities which require concentration, e.g. time at school, school work, reading, some crafts/hobbies, socialising and screen time (phone, TV, computer, other devices)

Discussing physical activities, which vary according to severity (e.g. severely affected – sitting up in bed; mildly affected – running)

Using paper/electronic diaries (including iPhone/iPad app ‘ActiveME’) to record time spent each day doing high-energy cognitive activities

Increasing activity by 10–20% each week [4, 16]

Problem solving

Managing setbacks

Flexible

Advice on exercise

Discussing a diagnosis and treatment of anxiety and/or depression

Advice on medication (if required)

Advice on symptom control (if required)

Prohibited

Detailed discussion of feelings, beliefs and how they change

Diaries on feelings and their relationship with behaviour