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Table 2 Examples of active participant involvement, other patient and public involvement, engagement and participation in clinical trials

From: When participants get involved: reconsidering patient and public involvement in clinical trials at the MRC Clinical Trials Unit at UCL

Activity Active participant involvement Patient/public involvement Public engagement Trial participation
Patients, carers and/or family members take part in discussions to plan a trial X X X
Trial participants take part in a discussion about the recruitment strategy or the development of a new questionnaire X X X
Trial participants take part in in-depth interviews about their experience of taking part in the trial X X X
Representatives (e.g. staff, patients or family members) from a patient organisation take part in a discussion about disseminating trial results X X X
Trial participants complete questionnaires about how the trial is conducted X X X
Results of the trial are presented to participants, patients and/or the public X X X