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Table 3 The scoring system used to establish participants’ knowledge of glaucoma and its management. Source: [9]

From: The Health Of Patients’ Eyes (HOPE) Glaucoma study. The effectiveness of a ‘glaucoma personal record’ for newly diagnosed glaucoma patients: study protocol for a randomised controlled trial

Number

Question

Scored 0

Scored 1

Scored 2

Scored 3

Max score

1

Can you tell me what you think glaucoma is?

Don’t know/ incorrect answer

Build up of pressure, raised/high pressure, nerve damage, loss of vision

Optic nerve damage, irreversible vision loss, chronic disease, slowly progressive (in own words)

NA

2

2

Can you tell me which part of the eye can become damaged with glaucoma?

Don’t know/ incorrect answer

Back of the eye

Retina

Optic nerve

3

3

Can you tell me what effect glaucoma has on vision if left untreated?

Don’t know/ incorrect answer

You go blind/you gradually go blind/ you lose vision

You get tunnel vision

NA

2

4

Can you tell me what part of vision glaucoma affects the most?

Don’t know/ incorrect answer

Visual field/field of vision/side vision

NA

NA

1

5

Is glaucoma hereditary/does glaucoma run in families?

No/don’t know

Yes

NA

NA

1

6

Do you know what investigations/tests will be carried out regularly at future clinic appointments to monitor changes in your eyes?

Don’t know/ incorrect answer

Either IOP measurement, visual field test or optic nerve examination (in own words)

Any two of the tests (in own words)

All three tests (in own words)

3

7

Do you know the name(s) of the drop(s) that has/have been prescribed for you?

Don’t know/ incorrect answer

Yes (client named the drops)

NA

NA

1

8

Do you know what the drops do?

Don’t know/ incorrect answer

Lower/reduce/control eye pressure

NA

NA

1

9

Do you know when you will need to collect your next prescription?

Don’t know/ incorrect answer

1 month/28 days

NA

NA

1

10

After opening a bottle of drops do you know how long you can use them before they reach their expiry date?

Don’t know/ incorrect answer

1 month/28 days

NA

NA

1

11

Do you know how long you will have to use drops for?

Don’t know/incorrect answer

For life/forever

NA

NA

1

  1. Maximum total score achievable: 17. IOP intraocular pressure