Table 4 Categorised PRO health domains showing number of items in existing PROMs assessing each domain

PRO domain

EQOL

FACT-E

GERD-HRQL

GIQLI

DAUGS 32

LAGS

QLQ-OG25

QLQ-OES18

QLQ-OES24

Adapted RSCL^a

Adapted RSCL^b

RSCL

PNPC

QLQ-C30

QLQ-C36

WOCS

MOS Sf-20

PAIS

POMS

SF 36

HADS

Frequency assessed in PROMs (total number of items)

Disease specific

Pain/pain-related swallowing

3

1

1

2

1

3

3

3

5

6

1

2

1

1

2

15 (35)

Appetite/eating/taste

4

3

4

5

1

6

4

4

3

1

1

1

1

13 (38)

Fatigue

1

1

2

1

1

2

1

3

3

15

4

11 (34)

Dysphagia/swallowing saliva

1

4

1

1

2

1

4

4

4

2

1

11 (25)

Regurgitation/vomiting

1

1

5

1

1

1

1

2

1

1

1

11 (16)

Reflux/heartburn

1

6

1

2

1

1

1

1

1

1

10 (16)

Nausea

1

1

1

1

1

1

1

1

1

9 (9)

Belching/bloating/gas

1

1

4

3

1

1

1

7 (12)

Diarrhoea/frequent bowel movements

5

2

1

1

1

1

1

7 (12)

Cough

1

1

1

1

1

1

1

7 (7)

Choking

1

1

1

1

1

1

1

7 (7)

Dry mouth

1

1

1

1

1

1

6 (6)

Breathing

1

1

1

1

1

1

6 (6)

Weight

1

1

1

1

1

1

6 (6)

Communication/speech difficulties

2

1

1

1

1

5 (6)

Eating - social impact

1

1

1

1

1

5 (5)

Sexual function

1

1

1

6

4 (9)

Constipation

1

1

1

1

4 (4)

Hair loss

1

1

1

1

4 (4)

Body image

1

1

1

1

4 (4)

Dizziness/dumping

5

2

1

3 (8)

Generic

Emotional function

2

8

6

3

2

3

7

5

7

19

4

8

4

5

6

43

5

14

18 (151)

Role physical/ADLs

2

2

1

2

8

8

8

9

3

4

3

4

5

13 (59)

Physical function

2

3

1

25

3

4

4

6

5

1

9

11 (63)

Social function

1

7

1

19

2

2

1

17

2

9 (52)

Generic health

1

1

1

1

5

2

6

7 (17)

Sleep

1

1

1

1

1

1

1

7 (7)

Global QOL

1

1

4

1

1

2

6 (10)

Cognition

1

3

2

1

7

5 (14)

Role emotional

2

4

2

3

4 (11)

Financial issues

5

1

1

1

4 (8)

Spiritual issues

2

1 (2)