Table 2 Verbatim names of PROM scales and single items

1 Activities of daily living

33 Extended familyrelationships

65 Professional care providers

2 Activity level

34 Fatigue

66 Psychological symptoms

3 Anger-hostility

35 Fatigue-inertia

67 Psychological distress

4 Anxiety

36 Financial difficulties

68 Psychological impact

5 Appetite loss

37 Financial impact

69 Psychological issues

6 Bodily pain

38 Fullness following meals

70 Reflux

7 Body image

39 Functional wellbeing

71 Role emotional

8 Choking

40 General health

72 Role function

9 Cognitive function

41 Global evaluations

73 Role physical

10 Confusion-bewilderment

42 Global QOL

74 Sexual relationships

11 Constipation

43 Global satisfaction

75 Sleep disturbances

12 Cough

44 Global life satisfaction

76 Social activities

13 Deglutition

45 Hair loss

77 Social environment

14 Deglutition disturbances

46 Health perceptions

78 Social function

15 Depression

47 Healthcare orientation

79 Social issues

16 Depression-dejection

48 Heartburn

80 Social/family wellbeing

17 Diarrhoea

49 Indigestion

81 Speech

18 Diarrhoea/constipation

50 Information needs

82 Spiritual issues

19 Difficulty in swallowing

51 Insomnia

83 Stool formation

20 Domestic environment

52 Loss of independence

84 Swallowing problems

21 Dry mouth

53 Loss of weight

85 Symptoms

22 Dumping

54 Medical treatment

86 Symptoms of GERD

23 Dysphagia

55 Mental health

87 Taste

24 Dyspnoea

56 Nausea & vomiting

88 Tension-anxiety

25 Eating

57 Odynophagia

89 Trouble swallowing saliva

26 Eating restrictions

58 Pain

90 Vigour-activity

27 Eating with others

59 Physical symptoms

91 Vitality

28 Emotion

60 Physical activity

92 Vocational environment

29 Emotional function

61 Physical distress

93 Weight

30 Emotional problems (anxiety)

62 Physical function

94 Worry/fear of recurrence

31 Emotional wellbeing

63 Physical problems

31 Esophageal cancer scale

64 Physical wellbeing